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Managing Incontinence:A Helpful Guide forCaregivers
Table of Contents03 IntroductionWhen to Seek HelpIncontinence Terms to Know07 Let’s Talk About ItHow to Start the ConversationOvercoming Emotional Hurdles10 Incontinence ProductsFinding the Best Products for Your Loved OneWhat Type of Incontinence Products Are Available?Size Matters: Finding the Right Fit14 Incontinence Hygiene 101How to Stay Clean, Healthy, and Odor-FreeFostering a Positive (and Safe) Toileting ExperienceFinding Your Family’s New Normal18 Self CarePrioritizing Self-Care While CaregivingTop 3 Ways to Care for Yourself While Caring for AnotherWays to Take a BreakNorthShore.com2
We want to start by mentioning the typically unspoken and always undervalued elephant in the room…Stepping into a caregiving role for a loved one is hard.While it remains a normal part of life and the aging process for many families, this simple fact does not make the lived-through transition any less challenging. And as with most major life shifts, making the decision to become a caregiver doesn’t come with an instruction manual.There isn’t a tough-conversation handbook or a 24/7 helpline to call when the hard moments happen. And we know this small guide won’t be your be-all and end-all solution, but at the very least, we hope it makes some of those hard moments a bit easier.Hello...3(800) 563-0161
If someone you love has started experiencing incontinence symptoms – whether urinary or bowel – or if you notice that their symptoms have started to become more frequent or severe, the rst step is always a conversation with a medical professional. There are many potential symptoms of incontinence. Here are a few signs that may mean it’s time to speak with a healthcare specialist. When to Seek HelpAlthough incontinence is very common, especially among older adults, it does not have to be considered a “normal” or “expected” part of aging.Many types of incontinence are highly treatable and manageable. However, the only way to discover what management plan is right for you is to speak with your doctor or another trained healthcare specialist before doing anything else.Avoiding or delaying treatment can sometimes increase the severity of the issue, so don’t hesitate to seek help if you notice new symptoms – sporadic or otherwise.Frequent UrinationNeeding to urinate more than eight times in a day.Bladder Always Feels FullEven after urination, your bladder doesn’t feel empty.Waking Up to UrinateWaking up two or more times at night to urinate.NorthShore.com4
Incontinence Terms to KnowUrgency IncontinenceUrgency incontinence is characterized by the intense sensation of needing to urinate right away, also known as overactive bladder (OAB), and leaking as a result. Urinary/Bowel IncontinenceThe two umbrella categories of incontinence. Urinary incontinence refers to an inability to fully control one’s bladder or the unintentional leaking of urine, and likewise, bowel or fecal incontinence refers to the unintentional voiding of feces.Stress Urinary Incontinence (SUI)Stress incontinence is the most common type of urinary incontinence and is caused by weak pelvic muscles that allow urine to leak out when pressure is exerted on the bladder. Types of activities that may trigger SUI include lifting heavy objects, bending over, jumping, running, or even simply coughing or sneezing.5(800) 563-0161
Incontinence Terms to KnowMixed IncontinenceThe experience of a combination of both urgency and stress incontinence symptoms. Overow IncontinenceCharacterized by difculty emptying the bladder completely each time one urinates, overow incontinence results in small amounts of urine escaping over time in a steady dribble as opposed to a singular gush.Nocturnal EnuresisAlso known as bedwetting, nocturnal enuresis is the involuntary loss of urine while asleep – particularly for those of an age where bedwetting is no longer expected (bedwetting in children typically resolves by age 7).Heavy vs. Light IncontinenceThe two main differentiators between heavy and light incontinence are how often leaks occur and the amount leaked at a time. Key characteristics of light incontinence include leaks that are sporadic and minor in nature – mostly a dribble rather than a gush. Heavy incontinence is identied by recurrent or constant leaking throughout the day with limited control of one’s bladder as well as during the night, leading to interrupted sleep and substantial leakage. Additionally, bowel incontinence is typically categorized as heavy incontinence. NorthShore.com6
Let’s TalkAbout It
23How to Start the ConversationFind a time when there’s no one else around and start by asking if now is a good time to talk about something hard. Giving them the option to say no while setting expectations that this conversation might be uncomfortable helps to prevent feelings of being ambushed. Try asking questions that allow them to explain what they’ve been experiencing and feeling without interjecting too many of your own observations:• Do you struggle to make it to the toilet in time?• Do you experience accidental leaks that require a change of clothing?• How is that affecting you?• Would you be open to talking to a doctor about it?It’s important they understand that they are not alone in this. Their symptoms are very manageable and often treatable. They have absolutely nothing to be ashamed of, and most importantly, you are here to help them.1The ability to openly discuss your loved one’s incontinence symptoms is an integral step in establishing a comfortable and respectful care relationship. And while it’s a difcult rst conversation to have, there are ways to make it easier for both of you.NorthShore.com8
It’s no secret that social stigmas often exacerbate one’s struggle with incontinence, transforming a common medical condition into an emotionally-wrought and challenging experience. Many times, the simple idea of needing to wear a diaper can be the hardest part to accept, prompting intense feelings of embarrassment, shame, and even anger.For caregivers, many of these same emotions can be just as prevalent. We feel embarrassment for what our loved one is going through and for our role in witnessing them in such a vulnerable state.These feelings can be especially difcult when caring for a parent or any person who held a previously authoritative role. This sudden shift in relationship dynamics can feel deeply jarring and unsettling.And the innate intimateness of providing care for someone with incontinence adds additional complexity to the situation.Know that all of your feelings and experiences are valid. Talking to other people who understand your situation – whether in a support group setting or through individual therapy – is enormously helpful. And ultimately, you can only properly care for another once you have taken care of yourself.Overcoming Emotional Hurdles9(800) 563-0161
IncontinenceProducts
There is no one-size-ts-all solution for incontinence and nding the right products can be a bit of trial and error. When looking for the right incontinence supplies, the rst step is usually determining which type and severity of incontinence your loved one experiences.For light to moderate incontinence, an adhesive pad worn inside regular, washable underwear might be enough protection. However, for more frequent or heavier leakage, a diaper is typically the best option. Deciding the type of diaper depends on both you and your loved one’s comfort level. If your loved one is still able and willing to use the toilet at times, a pull-on style might offer the most adaptability. Whereas if you both value longer stretches of protection, a max-absorbent tab-style diaper brief might be the best t.Finding the Best Products forYour Loved OneGuards for Men Booster PadsLinersPull-OnStyle UnderwearDiaper-Style Briefs with TabsLESS ABSORBENTMORE ABSORBENT11(800) 563-0161
What Type of IncontinenceProducts are Available?Traditional tab-style diaper that works great for quickon-the-go changes.Diaper-Style Briefswith TabsThe closest t to regular underwear. These may work best for those who can still use the restroom.Pull-On StyleUnderwearMegaMax®GoSupreme®Designed to be worn in washable underwear only. The backsheet helps prevent leaks.Liners and Guards (Pads)These ow-thru pads provide added absorbency to any disposable undergarment.Booster PadsDynaDry® SupremeEternaDry®NorthShore.com12
Size Matters:Finding the Right FitFinding the right t is one of the most important steps to preventing leaks. If a product is too loose or too tight it may not work correctly regardless of absorbency. NorthShore® offers a wide range of sizes – including plus-size and bariatric sizing – ensuring all customers can nd the right size.Brief should t snugly with the placement of the tape tabs on the hips and no gaps around the legs.Too Big Too SmallDiaper-Style with TabsUnderwear should t snugly touching the crotch with no gaps around the legs.Too Big Too SmallPull-On Style Underwear13(800) 563-0161
IncontinenceHygiene 101
When it comes to helping your loved one maintain proper hygiene with incontinence, it all comes down to keeping their skin as dry and healthy as possible. For proper skin care, it’s best to rely on specialty products and mild cleansers designed to eciently remove urine and feces. Avoid scrubbing the skin with rough exfoliants or harsh soaps – perineal cleansers are usually a safe bet.Depending on your loved one’s ability, make sureeither you or them are cleaning their genitalsthoroughly at least once a day, and fresheningthe area with cleansing wipes or another kind ofno-rinse wash solution between changes. Additionally, barrier creams and ointmentsare invaluable in protecting the skin fromirritations. Try to avoid creams or lotionsthat include any fragrances, dyes orpetroleum, as this may lessen theeffectiveness of certain absorbencyproducts. Always remember that it is so much easierto prevent skin irritation than to treat it.How to Stay Clean, Healthy,& Odor-FreeProduct Shown:NorthShore®Supreme Wipes15(800) 563-0161
For most individuals who experience incontinence, wearing a diaper or absorbency products does not preclude them from using the toilet like anyone else. For many, diapers become a valuable safety net for when they are unable to make it to the toilet in time. But staying aware of safe toileting practices and general health tips remains hugely important.Fostering a Positive ToiletingExperienceAdditionally, for those suffering from dementia symptoms, a reliable schedule provides comfort and security.Avoid Dietary IrritantsCoffee, tea, and soft drinks are the most common culprits, but everyone’s digestive system is different. Try keeping a food and beverage journal for a week to see if any patterns start to emerge.Stay HydratedIt might be counterintuitive at times, but staying properly hydrated can prevent overactive bladder symptoms. However, if increased hydration starts to lead to more middle-of-night trips to the bathroom or enuresis, it can also be helpful to shift your uid intake towards the rst half of the day. Timed Toileting is KeyA good schedule solves so much, especially when it comes to incontinence. Making sure your loved one has a set time to use the bathroom helps to ensure fewer surprise accidents and rushing to avoid any near misses.16 NorthShore.com
At the end of the day, despite its long list of challenges and inconveniences, incontinence does not have to be the thing that denes your loved one or your time together. And it denitely does not have to be a prison sentence. With the help of the right incontinence products and supplies, you both can continue to live out the lives you love. Below are a few products that go a long way…Prep a Go-To Bag for Outings.Whether you’re visiting family or attending a doctor’s appointment, it’s important to pack a separate bag with all the incontinence supplies your loved one will need for a day away from home including: Finding Your Family’s New NormalWipesSuper AbsorbentUnderpadGlovesHandSanitizerSpare Set of Clothing(just in case)Disposal BagsPull-OnUnderwearTab-Style DiaperChoose a product that can protect your loved one against leaks and odors while providing comfort and condence. NorthShore® MegaMax® Overnight Diapers are designed to hold multiple wettings throughout the day, reducing the number of changes and backup products needed while away from home. 17(800) 563-0161
Self-Care
The number one thing that anyone caring for another human being can do – whether you’re a professional trauma nurse or the child of an elderly parent – is recognize the importance of self-care.No matter how difcult it might seem to carve out time in the day to take care of yourself, it is an imperative piece of the puzzle – both to prevent burnout and to be the best caregiver that you can be. After all, you can’t pour from an empty cup.Prioritizing Self-CareWhile Caregiving19(800) 563-0161
Top 3 Ways to Care For YourselfWhile Caring for Another1. Make Time for “Me Time.” Read a book, watch a favorite show, go for a walk, take an exercise class – make a promise for 1-2 hours a week that you won’t do chores or anything that isn’t explicitly just for you. It’s time to reconnect with yourself and the things that bring you joy. Meditation is also an incredibly valuable tool to recenter yourself and manage stress. Setting aside ve minutes a day for simple breathwork or guided meditation can help you feel more mindful and grounded in your daily life.2. Talk to SomeoneJoining support groups and participating in therapy are endlessly helpful ways to relieve stress, vent in a safe setting, and manage your mental health. If you don’t know where to start, talk to your doctor for a therapist referral who specializes in caregiver support. Additional resources, such as the National Alliance on Mental Illness, Psychology Today’s Find a Therapist, the APA’s Psychologist Locator,and the ZenCare therapist database are all available online.3. Explore Respite Care OptionsRespite care offers a temporary break for primary caregivers – ranging from a few hours to several weeks. It can happen at home, in a healthcare facility, or an adult care center. Offering a much-needed reprieve for caregivers, respite care can provide an invaluable feeling of “reset” before burnout sets in. Many community organizations offer respite care services. Visit ARCH National Respite Network and Resource Center to learn more about what resources are available in your area.NorthShore.com20
Ways to Take a Break21(800) 563-0161
NorthShore.com • Info@NorthShore.com • (800) 563-0161Sources: https://nafc.org/skin-care/ ; https://www.aarp.org/health/healthy-living/info-2022/frequent-urination.html ; https://www.nami.org/Support-Education ; http://www.psychologytoday.com/us/therapists ; https://locator.apa.org/ ; https://zencare.co/ ; https://arch.gnosishosting.net/Portal/RegistryNorthShore® offers samples and a convenient Product Finder Tool to help you nd the right product!Call (800) 563-0161or visit NorthShore.com/GetSamplesfor personalized assistance & recommendations.